Sunday, May 4, 2008

Just Short of Miserable

I believe I have found the source of my pain and thus no longer need to speak to my doctor about it. Last week I was having abdominal cramping and took Imodium A-D, as per one of my radiation nurses. Now that I am no longer taking the stuff, the pain has decreased. I will speak to my doctor about an alternative to Imodium so that I might be able to avoid any additional pain from abdominal cramping.

In the mean time, the chemotherapy administered to me (5-FU) has caused sores on the inside of my bottom lip which seriously limits my ability to eat without pain. Although I have found that cold foods are significantly easier to tolerate. And I will speak to the chemotherapy staff and find out what else might provide me some relief, since I have six more weeks of chemotherapy and certainly can not afford to reduce my caloric intake for that long.

The radiation on the other hand is causing a reaction in the treatment area that feels like a sunburn. So, every time I visit the bathroom, which for me is quite frequent, I must face the sting that results from any type of contact on this "sunburned" area. Essentially, I feel like I kissed a jellyfish then took my pants down and sat on it.

If you have never come into contact with a jellyfish, they sting whatever part of your body they touch (except for the palms of your hands and the bottoms of your feet - which is irrelevant for this conversation).

So, I can say with ease that my level of physical discomfort is just short of miserable. I do have topical treatments to reduce both discomforts, but they only reduce the discomfort - they do not cure it or remove it. Daniela keeps reminding me this is temporary and that does help a little. And I will share my situation with my doctors on Monday and find out if they have any additional remedies for me.


  1. For the mouth sores, use 1 part liquid benadryl mixed with 1 part milk of magnesia as a mouthwash.

    Have you tried Boudreaux's Butt Paste?

    Both are remedies I remember from my friend's chemo woes.

    Thinking of you.

  2. Hang in there Bert!!!!! It is only temporary, even though it might feel like forever.

    You are in my thoughts.

    Maria Brown

  3. I met a reflexologist last weekend who suggested a clove of garlic for the radiation sunburn. Both eating it and applying it.
    Talk to you soon,