Friday, May 22, 2009

The Latest

I totally forgot to post an update from my last doctor's appointment about 2 weeks ago. It was a standard appointment. The doc said my blood work looked good and he saw no cancer markers. Pretty routine.

As far as how I am feeling, this pulmonary embolism isn't as bad as it originally was - I can go for walks as long as I don't move too quickly. I don't get short of breath or dizzy like I used to, but again, I do get very tired. When I visit friends and spend time talking or playing guitar and singing, I come home exhausted. Oddly I tend to feel the majority of the fatigue the following day - I simply have no energy.

I sleep, on average, 11 hours a day. Sometimes 12, sometimes 10. But during the remaining hours that I am awake, I tend to drink a cup of coffee about half way through to keep my energy up. My doctor informed me I could have lung damage as a result of the embolism, but I didn't ask him about it. Right now, I only want to deal with what I know to be true. If it is so, I'll drive off of that bridge when I get to it. I'll deal with whatever comes the best I know how.

I'm happy to say I wrote a song the other day. It has been a long time since I have written a song. It's a lot - to reflect upon these last two years of my life in addition to thoughts about what my friend John is dealing with. The doctors can not treat him. All he has left is time with his loved ones and all the other extraordinary people in his life. Not everyone has the opportunity to say and do what matters most with those dearest, assuming the doctors are correct. It seems a peculiar privilege to have such an insight. But I say seems because I obviously have no idea what it is truly like for him. What I do know is that when I am with him, his spirits are amazing. You are an incredible person, John. God Bless You.

Should my health remain good, I will probably not write frequently other than sharing my monthly doctors updates. Thanks for all you have provided me with your listening.

Love Bert

Monday, May 18, 2009

The Ramble-n-RollReview: A Wonderful Event

The Ramble-n-Roll Review Benefit for John Reilly was an incredible invent. Rarely have I experienced so much love and vulnerability with so many people at one time. Emotionally, musically and financially, the benefit was a success.

Wednesday, May 6, 2009

Ramble-n-Roll Revue: A Concert Benefit for John Reilly

It has been confirmed. My friend, John Reilly has Stage IV Pancreatic Cancer. It's breaking my heart as well as the hearts of many others. John is so much to so many people, I don't even know how to write about it. So, instead, I want you know about a benefit for him happening for him.

Sunday May 17th
75 Pulaski St Auburn, NY
12 noon to 8 pm
minimum donation: $10.00

Performers will be Bert Scholl & Kevin Kinsella, The Villagers, Sons of the Bunkhouse, Hoopes Park Pond Explosion, Deauville Ramble Society, Teenager, Infra Red Radiation Orchestra, Bob Piorun, The Disclaimers and the All Star Tribute to John Reilly.

Tuesday, May 5, 2009

Pretty Darn Tired Lately

I had thought by now I wouldn't be posting much on this blog. I figured at this point, the blog would just be for what are currently my quarterly scan results. And, I hadn't planned on the Pulmonary Embolism or the Shingles. It seems the Shingles are starting to go away. Fortunately, they weren't too bad. In fact the pharmaceuticals I took for them were worse than the Shingles themselves. And since embolisms, Shingles, and the pharmaceuticals prescribed for Shingles make a person tired, I've been pretty darn tired lately. It's definitely not uncommon for me to sleep 10 to 12 hours any given night.

The Pulmonary Embolism is definitely still present. I have moments during which my energy levels feel relatively normal, but when I exert myself during those times, i.e., walk for more than 1000 feet, I find myself without much energy and then not just tired by the end of the day, but exhausted. I definitely can't run yet or even walk at a fast pace. However, I do have more energy than I did when I was originally diagnosed with the embolism and that's certainly a plus.

My next scheduled visit with my oncologist is mid-month and I look forward to hearing that it has shrunk significantly.